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EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease
 — 2: A qualitative analysis of the experience of caregiving
Author(s)Joanna Murray, Justine Schneider, Sube Banerjee
Journal titleInternational Journal of Geriatric Psychiatry, vol 14, no 8, August 1999
Pagespp 662-667
KeywordsDementia ; Spouses as carers ; Stress ; Evaluation ; Methodology ; Europe.
AnnotationSpouses caring for a partner with dementia are subject to physical, psychological and social stresses. A fuller understanding of the subjective experience of caring is an important area of enquiry, in view of this role's value in preventing admission to institutional care. In this EUROCARE study, 20 co-resident spouses of people with probable dementia of the Alzheimer's type, who had ben diagnosed as such within the past 12-36 months were recruited from service contacts in 14 of the 15 EU member states. All completed a semi-structured interview including open-ended questions about the experience of caring. Overall, the most commonly expressed difficulties reflected: loss of companionship through diminished quality of communication; loss of reciprocity as carers experienced their partners' growing dependency; and deterioration in their partners' social behaviour. Satisfaction from caring stemmed from: a feeling of job satisfaction; continued reciprocity and mutual affection; companionship; and the fulfilment of a sense of duty. (RH).
Accession NumberCPA-990825290 A
ClassmarkEA: P6:SN: QNH: 4C: 3D: 74

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