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Three phase development of caring capacity in primary caregivers for relatives with Alzheimer's disease
Author(s)Geila Bar-David
Journal titleJournal of Aging Studies, vol 13, no 2, Summer 1999
Pagespp 177-198
KeywordsSpouses as carers ; Children [offspring] as carers ; Attitude ; Dementia ; Longitudinal surveys ; Canada.
AnnotationMultiple, open-ended qualitative interviews were conducted with 16 Canadian primary caregivers for relatives with Alzheimer's disease (AD), to describe caregiver self-development through the caregiving journey. Participants were 10 men and 6 women from the area around Toronto, of whom 12 were spouse caregivers and 4 were child caregivers. In this study, caregiver change is traced up to five years after the care recipient's death. Caregivers' capacity for caring was found to be at the core and to unfold in three phases: development of caring capacity for the care recipient, development of capacity of self-care, and development of caring capacity for others. The four elements of caring capacity - perception, motivation, competency, action - are expressed in relation to the care recipient, to the self, and to less familiar "others". The caregiving experience tends also to prompt caregivers to become caregivers for humanity, and to expand their sense of self. This may lead to the development of the altruistic self, which incorporates both a selfless concern for the welfare of others and self-directed concern for one's own welfare. (RH).
Accession NumberCPA-990728229 A
ClassmarkP6:SN: P6:SS: DP: EA: 3J: 7S

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