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Informal care and terminal illness
Author(s)Penny Rhodes, Sandra Shaw
Journal titleHealth & Social Care in the Community, vol 7, no 1, January 1999
Pagespp 39-50
KeywordsTerminal care ; Dying ; Services ; Family care ; South Yorkshire ; North Yorkshire.
AnnotationThis paper is based on a study of the care and services received by people in the year before death in one Yorkshire health authority. In 1997, in-depth interviews were carried out with bereaved relatives and carers of 33 people who had died in the previous 18 months. Deaths where people were judged to have needed no input from palliative care services were excluded. The sample covered a wide range of caring arrangements, experiences of caring for someone who is dying, support from formal services, place and manner of death. All those interviewed were providing some form of informal care or support to those who died, in some cases 24 hour care. The interviews provided insight into carers' experiences of services to support both the dying person and themselves in their caring role. The paper discusses the ways in which care of the terminally ill is distinctive. It explores the role of informal care in relation to the wider character and history of the local community, in particular the significance of its declining industrial base, and secondly, the availability of appropriate services to support those caring for the terminally ill. (AKM).
Accession NumberCPA-990129405 A
ClassmarkLV: CX: I: P6:SJ: 85: 8NY

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