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Centre for Policy on Ageing | |
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Advance directives for non-therapeutic dementia research
— some ethical and policy considerations | | Author(s) | R L P Berghmans |
| Journal title | Journal of Medical Ethics, vol 24, no 1, February 1998 |
| Pages | pp 32-37 |
| Keywords | Dementia ; Patients ; Rights [elderly] ; Wills ; Social ethics ; Research. |
| Annotation | The use of advance directives in clinical dementia research is explored, focusing on advance consent to participation of demented patients in non-therapeutic research involving more than minimal risks and/or burdens. First, morally relevant differences between advance directives for treatment and care, and advance directives for dementia research are discussed. Next, attention is paid to the philosophical issue of dementia and personal identity, and the implications for the moral authority of research advance directives. Thirdly, a number of practical shortcomings of advanced directives for non-therapeutic dementia research are explored, and attention is paid to the role of proxies. It is concluded that upon a closer look, the initial attractiveness of advance directives for dementia is lessened, and that it is doubtful whether these instruments can compensate for the lack of subject consent in case of non-therapeutic dementia research involving more than minimal risks and/or burdens for the incompetent demented subject. (RH). |
| Accession Number | CPA-981020234 A |
| Classmark | EA: LF: IKR: VTH: TQ: 3A |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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