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The burden of Parkinson's disease on society, family, and the individual
Author(s)Kathryn Whetten-Goldstein, Frank Sloan, Elizabeth Kulas
Journal titleJournal of the American Geriatrics Society, vol 45, no 7, July 1997
Pagespp 844-849
KeywordsParkinson's disease ; Costs [care] ; Stress ; Services ; Family care ; Remuneration ; United States of America.
AnnotationAs the population ages, the number of families living with Parkinson's Disease (PD) increases. The purpose of this US study was to examine the burden of PD on society, family, and the individual. A total of 109 people with PD in Central North Carolina were interviewed, using standard instruments to assess income, health status, health-related costs, and household activities. Results showed that the total per capita societal burden was approximately $6000 per year, the greatest single element if which was compensation for earnings loss for those aged less than 65. Government insurance covered 85% of the sample. The largest components of family burden were the burden of caregiving and that of earnings loss. Spouse caregivers provided care for a mean of 22 hours per week. The authors conclude that the direct cost of the disease only reflect a small portion of the burden. The hidden costs, in the form of lost earnings, informal care, and changing roles are substantial. (AKM).
Accession NumberCPA-980917404 A
ClassmarkCR6: QDC: QNH: I: P6:SJ: WL: 7T

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