Centre for Policy on Ageing
 

 

Getting meaningful informed consent from older adults
 — a structured literature review of empirical research
Author(s)Jeremy Sugarman, Douglas C McCrory, Robert C Hubal
Journal titleJournal of the American Geriatrics Society, vol 46, no 4, April 1998
Pagespp 517-524
KeywordsRights [elderly] ; Social ethics ; Patients ; Medical care ; Social surveys ; Literature reviews.
AnnotationA systematic review of published literature on informed consent reveals evidence for impaired understanding of informed consent information in older subjects and those with less formal education. Relevant literature was identified by searching electronic databases (AGELINE, BIOETHICSLINE, CancerLit, Ethics Index, Health, LegalTrac, MEDLINE, PAIS International, PsycInfo, and Sociofile). 99 articles met inclusion criteria: reports of primary research data, and inclusion of older patients in the sample. They posed 289 unique research questions on a wide range of aspects of informed consent: recruitment (60); decision making capacity (21); voluntariness (6); disclosure (30); understanding (139); consent forms (7); authorisation (11); policies (13); and other (2). Older age was sometimes associated with decreased participation in research. Effective strategies to improve the understanding of informed consent information should be considered when designing materials, forms, policies, and procedures for obtaining informed consent. The rights and interests of patients and others participating in research must also be adequately protected. (RH).
Accession NumberCPA-980527010 A
ClassmarkIKR: TQ: LF: LK: 3F: 64A

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