Centre for Policy on Ageing
 

 

The right to know?
 — sharing the diagnosis of dementia
Author(s)Kate Fearnley, Jane McLennan, Dot Weaks
Corporate AuthorAlzheimer Scotland - Action on Dementia; Mental Health Foundation Scotland
PublisherAlzheimer Scotland, Edinburgh, 1997
Pages41 pp
SourceAlzheimer Scotland - Action on Dementia, 22 Drumsheugh Gardens, Edinburgh EH3 7RN.
KeywordsDementia ; Diagnosis ; Rights [elderly] ; Social ethics ; Case studies ; Reports ; Scotland.
AnnotationThe issue of whether people with dementia should be told their diagnosis has become more topical as diagnostic techniques have improved. Increasingly, dementia is diagnosed at an early stage of the illness, when the person with dementia might be considered more likely to understand its implications. This report looks at current discussions on the subject, and seeks to put them in the context of an ethical approach to the care of people with dementia and their families. It asks if there is a 'right' to know, and raises issues for the person with dementia and his or her family, as well as possible conflicts of interest between people with dementia and their carers. It examines good practice in giving a diagnosis, covering: practical issues for people in the early and later stages of dementia; implications for the primary care team; principles and guidelines for good practice when giving the diagnosis; and case studies of good and poor practice.
Accession NumberCPA-980313212 B
ClassmarkEA: LK7: IKR: TQ: 69P: 6K: 9A

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