Centre for Policy on Ageing



Researching dementia care and family caregiving: extending ethical responsibilities
Author(s)	Charlotte L Clarke, John Keady
Journal title	Health Care in Later Life, vol 1, no 2, May 1996
Pages	pp 85-95
Keywords	Dementia ; Family care ; Social ethics ; Research ; Methodology.
Annotation	This article argues that research responsibilities extend beyond those ethical dilemmas which are conventionally acknowledged to the impact of the research in a collective sense. It is contended that there are political implications to researching groups whose profile, as a whole, may subsequently be altered on a professional, and ultimately, on a societal level. The authors draw upon their research experiences in dementia and family caregiving to illuminate this debate. A number of tensions are discussed, which have implications for recognised issues in conducting research and extended ethical responsibilities. In particular, these tensions are heightened for health care practitioners engaged in research and when qualitative data collection methods are employed. Consideration must also be made of the impact of the research on the exposure of pathology, the medicalisation of dementia, and the uncertainty in caring for someone with this condition.
Accession Number	CPA-980212207 A
Classmark	EA: P6:SJ: TQ: 3A: 3D
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...from the Ageinfo database published by Centre for Policy on Ageing.