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Centre for Policy on Ageing | |
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Living with Parkinson's disease — perceptions of invisibility in a photovoice study | Author(s) | Kerstin Roger, Monika Wetzel, Leslie Penner |
Journal title | Ageing and Society, vol 38, no 5, May 2018 |
Publisher | Cambridge University Press, May 2018 |
Pages | pp 1041-1062 |
Source | http:://www.cambridge.org/aso |
Keywords | Parkinson's disease ; Spouses ; Personal relationships ; Case studies ; Methodology ; Qualitative Studies ; Canada. |
Annotation | There are more than 65,000 people living with Parkinson's disease in Canada. In this paper, the authors discuss a single case about how one such person describes invisible and visible symptoms in the context of being part of a couple, and how this context shapes their social and life world. Based on previous community research, the authors prioritise the need to understand better how experiences and feelings of invisibility could be shaped by relational dynamics, interfacing with service provision, and social forces, with the overarching view of understanding better the experiences of participants living with Parkinson's disease. A photovoice methodology (using photography and open-ended inteviews) was employed. A discussion of Bindy and Volta's case study leads to a better understanding of how strong spousal support can significantly alter how one individual experiences and defines living with Parkinson's. (RH) |
Accession Number | CPA-180504207 A |
Classmark | CR6: SN: DS: 69P: 3D: 3DP: 7S |
Data © Centre for Policy on Ageing |
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...from the Ageinfo database published by Centre for Policy on Ageing. |
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