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Centre for Policy on Ageing | |
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'I just want to get on with my life'
— a mixed-methods study of active management of quality of life in living with dementia | | Author(s) | Charlotte L Clarke, Sarah E Keyes, Heather Wilkinson |
| Journal title | Ageing and Society, vol 38, no 2, February 2018 |
| Publisher | Cambridge University Press, February 2018 |
| Pages | pp 378-402 |
| Source | http://www.cambridge.org/aso |
| Keywords | Dementia ; Quality of life ; Advocacy ; Advisory services [elderly] ; Qualitative Studies ; Quantitative studies ; England. |
| Annotation | The active management of the experience of living with dementia appears to improve quality of life despite the lack of disease modification. However, research to date has been largely of modest scale, and explanatory factors for improvements have been under-conceptualised. Thus, although promulgated through national strategies, the evidence base is relatively weak. This paper reports on a nation-wide study of the influence of the National Dementia Strategy for England in relation to Dementia Adviser and Peer Support Network services in 40 demonstration sites. The research aimed to identify ways in which the services contribute to the well-being and resilience of people with dementia and care partners. A mixed-methods research design collected data through: activity and outcome monitoring; organisational surveys; in-depth case studies, including qualitative interviews with people with dementia (N = 47) and care partners (N = 54); well-being and quality of life measures; and interviews with staff and other stakeholders (N = 82). Three themes are explored: addressing individual and community needs; promoting independence, control and choice; and getting a life back. Services promoted independence, control and choice, and consequently enabled people to re-narrate their lives as purposeful within their communities. Ways in which these are achieved resemble the public health model of lay health advisor. This research adds to the imperative to approach dementia as a key public health concern. |
| Accession Number | CPA-180209206 A |
| Classmark | EA: F:59: IQ: IT: 3DP: 3DQ: 82 |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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