| |
Centre for Policy on Ageing | |
 | |
|
Informed consent to research with cognitively impaired adults
— transdisciplinary challenges and opportunities | | Author(s) | Beth Prusaczyk, Steven M Cherney, Christopher R Carpenter, James M DuBois |
| Journal title | Clinical Gerontologist, vol 40, no 1, January-February 2017 |
| Publisher | Taylor and Francis, January-February 2017 |
| Pages | pp 63-73 |
| Source | http://www.tandfonline.com |
| Keywords | Mental disorder ; Rights [elderly] ; Participation ; Research ; Social ethics ; Multi disciplinary ; United States of America. |
| Annotation | Due to issues of informed consent regarding participation in research, older adults with cognitive impairments are often excluded from high-quality studies that are not directly related to cognitive impairment; this has led to a dearth of evidence for this population. The challenges to including cognitively impaired older adults in research and the implications of their exclusion are a transdisciplinary issue. The ethical challenges and logistical barriers to conducting research with cognitively impaired older adults are examined from the perspectives of three different fields: social work, emergency medicine, and orthopaedic surgery. Issues related to funding, study design, intervention components and outcomes are discussed through the unique experiences of three different providers. A fourth perspective - medical research ethics - provides alternatives to exclusion when conducting research with cognitively impaired older adults such as timing, corrective feedback and plain language, and capacity assessment and proxy appointments. Given the increasing ageing population and the lack of evidence on cognitively impaired older adults, it is critical that researchers, funders and institutional review boards should not be dissuaded from including this population in research studies. (RH). |
| Accession Number | CPA-171124204 A |
| Classmark | E: IKR: TMB: 3A: TQ: 3DM: 7T |
Data © Centre for Policy on Ageing |
|
| ...from the Ageinfo database published by Centre for Policy on Ageing. |
| |
|