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Centre for Policy on Ageing | |
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Decision trajectories in dementia care networks
— decisions and related key events | | Author(s) | Leontine Groen-van de Ven, Carolien Smits, Karen Oldewarris |
| Journal title | Research on Aging, vol 39, no 9, October 2017 |
| Publisher | Sage, October 2017 |
| Pages | pp 1039-1071 |
| Source | http://journals.sagepub.com/home/roa |
| Keywords | Dementia ; Self care capacity ; Services ; Informal care ; Management [care] ; Qualitative Studies ; Netherlands. |
| Annotation | This prospective multi-perspective study provides insight into the decision trajectories of people with dementia by studying the decisions made and related key events. This study includes three waves of interviews, conducted between July 2010 and July 2012, with 113 purposefully selected respondents in the Netherlands (people with beginning to advanced stages of dementia and their informal and professional caregivers) completed in 12 months (285 interviews). A multi-layered qualitative analysis comprises content analysis, timeline methods and constant comparison. Four decision themes emerged: managing daily life, arranging support, community living, and preparing for the future. Eight key events delineate the decision trajectories of people with dementia. Decisions and key events differ between people with dementia living alone and those living with a caregiver. This study clarifies that decisions relate not only to the disease but also to living with the dementia. Individual differences in decision content and sequence may affect shared decision-making and advance care planning. |
| Accession Number | CPA-171027208 A |
| Classmark | EA: CA: I: P6: QA: 3DP: 76H |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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