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Centre for Policy on Ageing | |
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What is important at the end of life for people with dementia?
— the views of people with dementia and their carers | | Author(s) | Sarah R Hill, Helen Mason, Marie Poole |
| Journal title | International Journal of Geriatric Psychiatry, vol 32, no 9, September 2017 |
| Publisher | Wiley, September 2017 |
| Pages | pp 1037-1045 |
| Source | http://www.orangejournal.org |
| Keywords | Dementia ; Dying ; Terminal care ; Family care ; Attitude ; Person-centred care. |
| Annotation | Approaching the end of life is often a time of vulnerability, particularly for people with dementia and their families where loss of capacity and the ability to communicate make assessment and shared decision-making difficult. Research has consistently shown that improvements in care and services are required to support better quality and more person-centred care for people with dementia towards and at the end of life. However the views of people with dementia about what factors contribute to high-quality care at this time are a neglected area. The aim of this study was to identify aspects of end-of-life care for people with dementia that are most important to them and their carers. Q-methodology, a mixed method combining qualitative and quantitative techniques to study subjectivity, was used to identify the views of people with mild dementia, their family carers and bereaved carers on end-of-life care. 57 participants were included in the study. Four distinct views were identified: family involvement, living in the present, pragmatic expectations and autonomy and individuality. Some areas of consensus across all views included compassionate care, decisions being made by healthcare professionals and information availability when making decisions. Overall study findings revealed several different views on what is important about end-of-life care for people with dementia. So a `one-size-fits-all' approach to care is unlikely to be most appropriate. Notwithstanding the differing viewpoints, these findings could provide a framework for service providers and commissioners for future care. (JL). |
| Accession Number | CPA-170922212 A |
| Classmark | EA: CX: LV: P6:SJ: DP: PAA |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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