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Centre for Policy on Ageing | |
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Operationalising ethical challenges in dementia research
— a systematic review of current evidence | | Author(s) | Emily West, Astrid Stuckelberger, Sophie Pautex |
| Journal title | Age and Ageing, vol 46, no 4, July 2017 |
| Publisher | Oxford University Press, July 2017 |
| Pages | pp 678-687 |
| Source | https://academic.oup.com/ageing |
| Keywords | Dementia ; Research ; Social ethics ; Rights [elderly] ; Protection [vulnerable adults] ; Literature reviews. |
| Annotation | Conducting research with people suffering from dementia can be fraught due to fears surrounding risks in vulnerable populations. This can make seeking approval for studies difficult. As research directly involving people with dementia is key for the development of evidence-based best practice, the development of a coherent ethical strategy to perform such research feasibly and effectively is of paramount importance. The objective of this paper was to review and synthesise ethical challenges in performing research with dementia sufferers. In undertaking a systematic review of the current literature, the authors identified the central issues and arguments characterising research that concerned the ethical dimensions of participation among the dementia population. Data were analysed using both inductive and deductive content analysis. Ethical considerations in research involving people with dementia primarily concerned the representation of the interests of the dementia sufferer and protection of his/her vulnerabilities and rights. A total of 2,894 results were returned from initial searches, following deduplication. In total 2,458 were excluded at title review, and following abstract review 158 papers remained; 29 papers were included for analysis after full paper review and data extraction. Papers ranged between 1995 and 2013. This review has highlighted a lack of consensus in current research and guidelines addressing these concerns. A clear stance on ethical governance of studies is important for future research and best evidence-based practice in dementia. (JL). |
| Accession Number | CPA-170728232 A |
| Classmark | EA: 3A: TQ: IKR: CA3G: 64A |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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