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Involving people with dementia in the work of an organisation
 — service user review panels
Author(s)Jane Tooke
Journal titleQuality in Ageing and Older Adults, vol 14, no 1, 2013
PublisherEmerald, 2013
Pagespp 56-65
Sourcewww.emeraldinsight.com/qaoa.htm
KeywordsDementia ; Services ; Voluntary agencies ; Usage [services] ; Participation ; Attitude.
AnnotationA project was undertaken to explore ways to increase the involvement of people with dementia in the work of the Alzheimer's Society. It included the establishment of two service user review panels (SURPs): one consisting of 6 service users in an urban area, and the other consisting of 8 members of an existing peer support group in a semi-rural area. This article explains the development and underlying principles of the panels, which took account of the specific communication and other needs of service users. It provides examples of the processes involved and issues arising. It describes the evaluation of the pilot project using observation of meetings, focus groups with panel members, and semi-structured interviews with participating staff. It reports that the evaluation found that participants valued the experience, and that the project reinforced the use of a relationship-based approach towards facilitating communication with people with dementia. It found that the panels fed into the organisation's work in a number of ways, including helping to set organisational priorities and develop quality standards, reviewing the content of materials and policies, and contributing to learning through interactions between staff and panel members. The panels were therefore a useful way to involve people with dementia, and enhanced staff understanding about communicating with people with dementia. It notes that since the pilot, Service User Review Panels have been rolled out across the organisation. (RH).
Accession NumberCPA-170616224 A
ClassmarkEA: I: PK: QLD: TMB: DP

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