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Centre for Policy on Ageing | |
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Bedlam or bliss?
— Recognising the emotional self-experience of people with moderate to advanced dementia in residential and nursing care | | Author(s) | Beatrice Godwin, Fiona Poland |
| Journal title | Quality in Ageing and Older Adults, vol 16, no 4, 2015 |
| Publisher | Emerald, 2015 |
| Pages | pp 235-248 |
| Source | www.emeraldgrouppublishing.com/qaoa.htm |
| Keywords | Dementia ; Residents [care homes] ; Emotions ; Self esteem ; Well being ; Care homes ; Nursing homes ; Qualitative Studies. |
| Annotation | The authors examine the self-experience of people with moderate to advanced dementia. While people with dementia are widely assumed to lose their sense of self, emotions are preserved long into dementia; and some can still discuss their lives, enabling exploration of respondents' own self-conceptualisation of experience. A mixed methods design with Interpretative Phenomenological Analysis approach used semi-structured empathetic interviews with ten people, purposively sampled, living in long-term residential or nursing care, to explore their experience and continuing goals. Supplementary information from family and others was used to contextualise core data. Data analysis identified emerging themes and super-ordinate concepts. Sustained well-being and resistant ill-being emerged as major themes. Findings demonstrated continuity in sense of self, moral awareness and diversity of emotional reactions to living with dementia, associated with their emotional capital. Research limitations/implications: The sample was small and limited to well- and moderately-funded care homes. How to provide such support in less well funded homes needs further research, as do reasons for resistant ill-being in advanced dementia. The findings suggest that everyday care of people with advanced dementia may sustain their sense of self, well-being and emotional capital. By empathically facilitating in-depth expression of individuals' feelings and views, this research illuminates the personal self-experience of advanced dementia, which has hitherto been little explored. (RH). |
| Accession Number | CPA-170512223 A |
| Classmark | EA: KX: DL: DPA: D:F:5HH: KW: LHB: 3DP |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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