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Centre for Policy on Ageing | |
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A synthesis of the evidence on peer research with potentially vulnerable adults
— how this relates to dementia | | Author(s) | Claudio Di Lorito, Linda Birt, Fiona Poland |
| Journal title | International Journal of Geriatric Psychiatry, vol 32, no 1, January 2017 |
| Publisher | Wiley Blackwell, January 2017 |
| Pages | pp 58-67 |
| Source | www.orangejournal.org |
| Keywords | Dementia ; Participation ; Research ; Adults ; At risk ; Literature reviews. |
| Annotation | The aim of this study was to identify the benefits, risks and practical challenges and to develop a model of good practice in peer research with people with dementia. The review conducted searches on PsycInfo, PubMed and Google Scholar for empirical investigations or discussion papers on peer research. Given the limited literature in the field of dementia, studies with groups who share similar demographics (older people), experience of stigma (mental health service users) and exclusion from research (people with learning disabilities) were included. No restrictions on language and publication date were applied. Three themes were identified: the potential benefits, the potential risks and the practical challenges of peer research. The authors then developed a model of good practice. The European Working Group of People with Dementia reviewed the authors' paper and added to the findings. Seven papers were included in the evidence synthesis. Potential benefits of peer research included enriched data and empowering people with dementia. Potential risks included power differentials between researchers and issues of representativeness. The practical issues for good practice included the training of peer researchers, defining involvement and roles, working with cognitive impairment and considering resource implications. The European Working Group of People with Dementia emphasised the importance of equality issues. Involving people with dementia in peer research can generate several benefits, including empowerment and opportunities for inclusion for the peer researchers and the research participants living with dementia, challenging academics' traditional views on research processes and gathering enhanced research data. There remains a need for further research on the impact of peer research in dementia studies. (JL). |
| Accession Number | CPA-170217245 A |
| Classmark | EA: TMB: 3A: SD: CA3: 64A |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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