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Centre for Policy on Ageing | |
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The stigma experienced by terminally ill patients
— evidence from a Portuguese ethnographic study | | Author(s) | Ana Patricia Hilario |
| Journal title | Journal of Social Work in End-of-Life and Palliative Care, vol 12, no 4, October-December 2016 |
| Publisher | Taylor and Francis, October-December 2016 |
| Pages | pp 331-347 |
| Source | htpp://www.tandfonline.com |
| Keywords | Terminal illness ; Dying ; Terminal care ; Attitude ; Informal care ; Qualitative Studies ; Portugal. |
| Annotation | The aim of this study was to offer an understanding of the ways in which terminally ill patients may face discrimination due to their visibly altered body. An ethnographic approach was adopted and fieldwork was conducted over 10 months in 2 in-patient hospice units in Portugal. Participant observation was complemented by 50 in-depth interviews with terminally ill patients, family members, and hospice staff. The stigma experienced by terminally ill patients derived mostly from the behaviour of peers, extended family members, and friends toward their visibly altered body. There was no evidence that these patients were discredited by their immediate family when they became visibly unwell, unlike what has been reported in previous studies. This finding could be related to the strong familial culture of Portuguese society. (RH). |
| Accession Number | CPA-170217225 A |
| Classmark | CV: CX: LV: DP: P6: 3DP: 76T |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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