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Centre for Policy on Ageing | |
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Telling it as it is
— involving people with dementia and family carers in policy making, service design and workforce development | | Author(s) | Ruth Marion Eley |
| Journal title | Working With Older People, vol 20, no 4, 2016 |
| Publisher | Emerald, 2016 |
| Pages | pp 219-222 |
| Source | www.emeraldgrouppublishing.com/wwop.htm |
| Keywords | Dementia ; Family care ; Usage [services] ; Participation ; Policy. |
| Annotation | This paper highlights the need for proper involvement of people with dementia and their carers in policy making, and suggests practical ways to achieve this. The author draws on particular insights gained as Programme Lead for Dementia at the Department of Health (DH) during the development of the first English National Dementia Strategy and, more recently, experience of developing engagement strategies in various localities. She outlines the importance of recognising that people with dementia and family carers are experts by experience. The best ideas come from people who are involved at an early stage. Without the insights gained through the lived experiences of people with dementia and family carers, policy makers and professionals run the risk of developing costly services that do not meet the needs of those who will be using them. A number of key practical pointers are developed and summarised. Engagement and one-off consultations are not enough. Real involvement has to be part of everyday practice, at all levels. It requires investment to enable people with dementia and carers to have a seat at the table, to speak about what matters to them, and to help professionals develop relevant services that meet their needs. (RH). |
| Accession Number | CPA-170106206 A |
| Classmark | EA: P6:SJ: QLD: TMB: QAD |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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