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Centre for Policy on Ageing | |
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| A typology of care-giving across neurodegenerative diseases presenting with dementia | | Author(s) | Kaitlyn P Roland, Neena L Chappell |
| Journal title | Ageing and Society, vol 35, no 9, October 2015 |
| Publisher | Cambridge University Press, October 2015 |
| Pages | pp 1905-1927 |
| Source | journals.cambridge.org/aso |
| Keywords | Dementia ; Parkinson's disease ; Informal care ; Stress ; Needs [elderly] ; Literature reviews. |
| Annotation | The purpose of this study is to develop and extend our understanding of dementia care-giving by introducing a typology of informal care-giving across four different diseases. Care-giving factors were examined with respect to specific dementia presentation in mild cognitive impairment, Alzheimer's disease, dementia with Lewy bodies, and Parkinson's disease-associated dementia. Informal care-giving literature in the four diseases was systematically searched to identify specific disease symptoms and resultant care-giving strains and outcomes. Key concepts were extracted and grouped thematically. The first classification, 'role-shift', reflects care-giving where cognitive deterioration results in changing roles, uncertainty and relational deprivation among married partners. The second classification, 'consumed by care-giving', refers to those caring for persons with dementia-motor decline that greatly increases worry and isolation. Finally, in the 'service use' classification, formal support is needed to help care-givers cope with daily responsibilities and behaviour changes. In each case, the dementia presentation uniquely impacts care-giver strains. A major conclusion is that the same support to all care-givers under the umbrella term 'dementia' is unwarranted: the development of targeted support is required. (RH). |
| Accession Number | CPA-150918205 A |
| Classmark | EA: CR6: P6: QNH: IK: 64A |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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