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Centre for Policy on Ageing | |
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How are decisions on care services for people with dementia made and experienced?
— a systematic review and qualitative synthesis of recent empirical findings | | Author(s) | Annika Taghizadeh Larsson, Johannes H Osterholm |
| Journal title | International Psychogeriatrics, vol 26, no 11, November 2014 |
| Publisher | Cambridge University Press, November 2014 |
| Pages | pp 1849-1862 |
| Source | www.journals.cambridge.org |
| Keywords | Dementia ; Services ; Care homes ; Nursing homes ; Participation ; Attitude ; Rights [elderly] ; Literature reviews. |
| Annotation | During recent decades there has been a growing recognition that people cannot be assumed incapable of making decisions about their own care solely on the basis of a dementia diagnosis. International agreements and legislative changes have strengthened the formal right for people with dementia to participate in decisions on care services. This raises important questions about how these decisions are currently made and experienced in practice. This review aims to address this question and highlight directions for further research. Following a literature search of relevant databases, 24 articles were identified, all representing qualitative studies. Relevant findings were extracted and synthesised along dimensions of involvement of the person with dementia in decisions on care services, using an integrative approach. The study identified three overarching ways in which people with dementia are involved primarily in the informal part of a process of decisions: excluded, prior preferences taken into account, and current preferences respected. Ten articles seemed to be based on the assumption that decisions on care services are invariably and solely made within the family and without participation of the person with dementia. This review emphasises the need for more updated research about international debates and agreements concerning capabilities and rights of people with dementia and about the potential formal contexts of care decisions in the country concerned. (JL). |
| Accession Number | CPA-150619244 A |
| Classmark | EA: I: KW: LHB: TMB: DP: IKR: 64A |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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