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The stages of driving cessation for people with dementia
 — needs and challenges
Author(s)Jacki Liddle, Sally Bennett, Shelly Allen
Journal titleInternational Psychogeriatrics, vol 25, no 12, December 2013
PublisherCambridge University Press, December 2013
Pagespp 2033-2046
Sourcewww.journals.cambridge.org
KeywordsDementia ; Driving capability ; Transitional phase ; Quality of life ; Well being.
AnnotationThe impact of dementia on safe driving is well recognised and it is generally accepted that all people with dementia are likely to need to cease driving at some stage in the disease process. Both driving and driving cessation can have poor outcomes for people with dementia and their caregivers in terms of health, safety, community access and well-being. Although approaches to facilitate better outcomes from driving cessation are being developed, the processes of driving cessation for people with dementia are still not fully understood. In the present study semi-structured interviews were undertaken with key stakeholders, including retired drivers with dementia, family members, and health professionals. Findings from four retired drivers with dementia, 11 caregivers and 15 health professionals characterised driving cessation for people with dementia as a process with three stages and associated challenges and needs. The early stage involved worried waiting, balancing safety with impending losses, and the challenge of knowing when to stop. The crisis stage involved risky driving or difficult transportation, acute adjustment to cessation and life without driving, and relationship conflict. The post-cessation stage was described as a long journey with ongoing battles and adjustments as well as decreased life space, and was affected by the disease progression and the exhaustion of caregiver. The concept of stages of driving cessation for people with dementia could be used to develop new approaches or adapt existing approaches to driving cessation. Interventions would need to be individualised, optimally timed, and address grief, explore realistic alternative community access, and simultaneously maintain key relationships and provide caregiver support. (JL)
Accession NumberCPA-150619228 A
ClassmarkEA: OPF: 4MT: F:59: D:F:5HH

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