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Carers' quality of life and experiences of adult social care support in England
Author(s)Stacey Rand, Juliette Malley
Journal titleHealth and Social Care in the Community, vol 22, no 4, July 2014
PublisherWiley Blackwell, July 2014
Pagespp 375-385
Sourcewileyonlinelibrary.com/journal/hsc
KeywordsInformal care ; Quality of life ; Community care ; Qualitative Studies ; England.
AnnotationInformal carers make a vital contribution to the well-being of the people they care for or look after. Against the policy background in England, this study explored the views of carers who are in contact with adult social care support services. A qualitative study with 31 carers recruited via local authorities and carers' organisations was conducted between April and July 2012. The aim was to collect data on carers' experiences and perceptions of quality of life (QoL) with and without adult social care and support for themselves or the person they look after. Through framework analysis, three key themes were identified: (i) definitions of social care services 'for the carer' or `for care recipient' and social care outcomes; (ii) carers' access to social care services; and (iii) the meaning and value of informal care. The authors find that carers' QoL is affected by social care support directed at carers and support directed at those they care for, as well as access to services, the experience of stigma in communities, and in how individual needs and preferences are considered when making decisions about care. While there is much to welcome in the direction of policy in England, this study has shown that there are some gaps in thinking around these areas that will need to be dealth with if the lives of carers are to be improved. (RH).
Accession NumberCPA-150522249 A
ClassmarkP6: F:59: PA: 3DP: 82

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