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Facilitating advance care planning with ethnically diverse groups of frail, low-income elders in the USA
— perspectives of care managers on challenges and recommendations |
| Author(s) | Jung Kwak, Eunjeong Ko, Betty J Kramer |
| Journal title | Health and Social Care in the Community, vol 22, no 2, March 2014 |
| Publisher | Wiley Blackwell, March 2014 |
| Pages | pp 169-177 |
| Source | wileyonlinelibrary.com/journal/hsc |
| Keywords | Ethnic groups ; Poor elderly ; Terminal care ; Planning [admin] ; Qualitative Studies ; United States of America. |
| Annotation | This study examined care managers' perspectives on facilitating advance care planning (ACP) with ethnically diverse older people enrolled in Wisconsin Family Care, a care programme that coordinates medical and long-term care for frail, poor older people. Seven in-depth interviews and two focus groups were conducted with 24 lead supervisors and care managers of care management teams between July and August 2008; data were analysed with qualitative thematic analysis method. Participants identified four main sources of challenges: death and dying are taboo discussion topics; the dying process is beyond human control; family and others hold decision-making responsibility; and planning for death and dying is a foreign concept. Participants' recommendations coping with these challenges were to: develop trust with elders over time; cultivate cultural knowledge and sensitivity to respect value orientations; promote designating a healthcare proxy; recognise and educate families and community leaders as critical partners in ACP; and provide practical support as needed throughout the illness experience. These findings suggest important practice implications for care managers working with increasingly diverse cultural groups of older people at the end of life. (RH). |
| Accession Number | CPA-150522240 A |
| Classmark | TK: F:W6: LV: QA6: 3DP: 7T |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |