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Centre for Policy on Ageing | |
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Where do I go from here?
— a cultural perspective on challenges to the use of hospice services | | Author(s) | Rosemary Frey, Merryn Gott, Deborah Raphael |
| Journal title | Health and Social Care in the Community, vol 21, no 5, September 2013 |
| Publisher | Wiley Blackwell, September 2013 |
| Pages | pp 519-529 |
| Source | wileyonlinelibrary.com/journals/hsc |
| Keywords | Ethnic groups ; Terminal care ; Pain ; Usage [services] ; Qualitative Studies ; New Zealand. |
| Annotation | Do hospice services as shaped by a western perspective adequately fulfil the needs of persons from non-Western cultures? Based on a Western view of palliative care, the vision outlined in the New Zealand Palliative Care Strategy (2001) is to deliver palliative care services, including hospice services, to all patients and their families requiring them in the context of an increasingly pluralistic and multicultural society. It is predicted that over the next two decades the proportion of people in New Zealand identifying as Maori, Pacific and Asian will dramatically increase. Ministry of Health information provided through a GAP analysis identified hospices as facing access-to-care pressures for Maori, Pacific and Asian patients. It is therefore critical to identify the challenges to hospice service access for Maori, Asian and Pacific patients. This project involved qualitative interviews with 37 cancer patients (Maori, Pacific and Asian self-identified ethnicities), whanau/family and bereaved whanua/family, as well as 15 health professionals (e.g. referring GPs, oncologists, allied health professionals) within one District Health Board. Patients and their families included both those who utilised hospice services, as well as those non-users of hospice services identified by a health professional as having palliative care needs. Challenges to hospice service utilisation reported included a lack of awareness in the communities of available services, as well as continuing misconceptions concerning the nature of hospice services. Language barriers were particularly reported for Asian patients and their families. Issues concerning the ethnic representativeness of the hospice services staff were raised. The findings highlight the importance of patient and family knowledge of hospice care for utilisation of services. This information can be used for future planning to enable hospices to both provide high quality evidence-based palliative care services for patients and families, and to provide consultative services to primary healthcare providers in the community. (RH). |
| Accession Number | CPA-130830207 A |
| Classmark | TK: LV: CT7: QLD: 3DP: 7YN |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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