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Centre for Policy on Ageing | |
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DEEP
— the engagement, involvement and empowerment of people with dementia in collective influencing | | Author(s) | Rachael Litherland, Toby Williamson |
| Journal title | Working with Older People, vol 17, no 2, 2013 |
| Publisher | Emerald, 2013 |
| Pages | pp 65-73 |
| Source | www.emeraldinsight.com/wwop.htm |
| Keywords | Dementia ; Pressure groups ; Participation ; Rights [elderly] ; Projects. |
| Annotation | The authors discuss the mapping processes and lessons learned in the Dementia Engagement and Empowerment Project (DEEP) to scope the user involvement activity of groups of people with dementia across the UK. Data was gathered using a mapping questionnaire designed with help from people with dementia, in-depth interviews and through a filming process at two national events. 32 groups completed the main questionnaire, and five groups were interviewed. The collective voice of people with dementia is at a relatively early stage. Groups are at different stages on their journeys and many (completely understandably) prioritise peer support, and local rather than national action. But user-led groups are growing in number and confidence. They ask for support in capacity-building, networking and learning from each other so they can increase their influence over attitudes, policy and services. Research that looks at the mechanisms that support the involvement of people with dementia is still in its infancy. Although the authors relied on self reports from groups they were able to identify, this paper combines data and findings from a wide range of groups to provide recommendations about how to improve the involvement of people with dementia. (RH). |
| Accession Number | CPA-130712210 A |
| Classmark | EA: PME: TMB: IKR: 3E |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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