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| Guidelines for nursing homes delivering end-of-life care to residents across the island of Ireland | | Author(s) | Suzanne Cahill, Daphne Doran, Max Watson |
| Journal title | Quality in Ageing and Older Adults, vol 13, no 1, March 2012 |
| Publisher | Emerald, March 2012 |
| Pages | pp 60-70 |
| Source | www.emeraldinsight.com/journals |
| Keywords | Dementia ; Terminal care ; Nursing homes ; Spouses ; Bereavement ; Quality of life ; Standards of provision ; Ireland ; Northern Ireland. |
| Annotation | This study was undertaken as part of the Living with Dementia programme based in the School of Social Work and Social Policy, Trinity College Dublin. It aim was to contribute to improving quality of life for people with end-stage dementia living in residential care settings, by investigating the experiences of aged spouses whose relatives died with end-stage dementia in nursing homes in both Northern Ireland (NI) and the Republic of Ireland (RoI). A second aim was to develop guidelines for nursing home staff for the delivery of quality care to residents with end-stage dementia in residential institutions. The study had two phases. Phase one involved conducting in-depth qualitative interviews with spouse caregivers whose relatives had died from dementia in long-stay care environments. Phase two entailed incorporating the information gathered through the in-depth interviews into draft guidelines and disseminating these to a multi-disciplinary group of health service professionals for their critical appraisal and ratification. The findings showed that most spouses deemed the end of life (EoL) care that was delivered to be of high quality, with person-centred, individual, kind, professional care being highly valued. Areas of dissatisfaction noted included poor communication, lack of involvement in key decision making, and poor symptoms control. Based on the study's findings, guidelines for the delivery of quality care in long stay residential institutions were developed in consultation with eight health service professionals. The authors hope these guidelines will contribute to improvements in the care of people with dementia at end of life, and will form the basis for the future development of policy, practices and procedures. (RH). |
| Accession Number | CPA-121221218 A |
| Classmark | EA: LV: LHB: SN: DW: F:59: 583: 763: 9Y |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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