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Care-givers' perspectives of occupational engagement of persons with dementia
Author(s)Megumi Tsunaka, Jenny C C Chung
Journal titleAgeing and Society, vol 32, part 4, May 2012
Pagespp 543-560
Sourcehttp://www.journals.cambridge.org/aso
KeywordsDementia ; Family care ; Activities of older people ; Engagement ; Attitude.
AnnotationReduced participation in activities is common among persons with dementia. Family care-givers play an important role in engaging their relatives with dementia in activities but little is known about their perception of occupational engagement. This study aimed to examine care-givers' perception of occupational performance of their relatives from three aspects: person, occupation and environment. In-depth interviews were conducted with 14 family care-givers, who were also asked to document the activity patterns of their relative, using the Activity Card Sort Hong Kong version (ACS-HK). The ACS-HK findings suggested that high-demand leisure activities were mostly retained (61%) while instrumental activities of daily living were the least retained (37%). Qualitative analysis revealed that care-givers' perception of activity participation was intertwined with their motives and behaviours to get their relatives engaged in activities. Care-givers acknowledged occupational engagement as a means of maintaining wellness and used various strategies to encourage their relative's activity participation. Apathy and passivity however were difficult to deal with. Also activity decisions appeared to depend on the availability of support resources and a balance between safety concerns and risk-taking. (JL).
Accession NumberCPA-120418001 A
ClassmarkEA: P6:SJ: G: DN: DP

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