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Centre for Policy on Ageing | |
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'Doubly deprived'
— a post-death qualitative study of primary carers of people who died in Western Australia | | Author(s) | Sharon Keesing, Lorna Rosenwax, Beverley McNamara |
| Journal title | Health and Social Care in the Community, vol 19, no 6, November 2011 |
| Pages | pp 636-644 |
| Source | http://www.ingentaconnect.com/content/bsc/hscc |
| Keywords | Dying ; Terminal care ; Family care ; Needs [elderly] ; Well being ; Australia. |
| Annotation | This study explored the daily experiences and occupational needs of family carers providing palliative care to people who were dying. In particular it examined their daily routines and ability to undertake other varied activities, and whether their needs were addressed in the community using available services. A purposive sampling method was used to identify ten people who had cared for a family member who had died in the preceding two years. Semi-structured interviews included questions about their experiences as a carer including routines, engagement in usual activities and the impact of the caring role on their daily life during and after the period of care. Two important themes were identified: the carers experienced disengagement and deprivation from their usual occupations during and after the period of care. They also described significant disempowerment in their role as carer. The findings show that carers are `doubly disadvantaged': they are unable to participate in their usual occupations, and they are not recognised for their contributions as carers. In addition, the current services and support available for carers in the community are deemed inadequate. (JL). |
| Accession Number | CPA-111124011 A |
| Classmark | CX: LV: P6:SJ: IK: D:F:5HH: 7YA |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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