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Centre for Policy on Ageing | |
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Culture, consent, costs and care homes
— enabling older people with dementia to participate in research | | Author(s) | Claire Goodman, Natasha L Baron, Ina Machen |
| Journal title | Aging & Mental Health, vol 15, no 4, May 2011 |
| Pages | pp 475-481 |
| Source | http://www.tandfonline.com |
| Keywords | Residents [care homes] ; Dementia ; Participation ; Research ; Longitudinal surveys. |
| Annotation | The study looked at factors that support or hinder the recruitment and participation of people with dementia living in care homes. In particular the research focused on methods used to recruit people with dementia to a longitudinal study that employed a mixed-method design to track events and care that older people with dementia experienced over two years in six care homes. A staged approach to recruitment was adopted involving separate meetings with staff, residents and relatives. Individual consent was secured with residents with dementia who could consent in the moment and for those without capacity, through mail and follow-up telephone contact with consultees. Data were collected on the frequency of meetings, issues raised by staff, consultees and people with dementia as well as the overall time taken to complete recruitment. Over five months, 133 older people with dementia were recruited. The process was supported or hindered by the number of individuals and organisations that needed to be consulted, the care home culture, staff's understanding of how people with dementia can be involved in research, and how they interpreted their role as mediators, protectors and gatekeepers. The authors conclude that care homes are isolated communities of care. To achieve the research objectives, researchers in the initial stages need to consider the philosophical underpinnings of individual care homes, including their organisational culture and cost implications. There is a need to develop credible infrastructures of support that enable people with dementia to participate in research. (JL). |
| Accession Number | CPA-110801007 A |
| Classmark | KX: EA: TMB: 3A: 3J |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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