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Centre for Policy on Ageing | |
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| Developing a carer communication intervention to support personhood and quality of life in dementia | | Author(s) | Tony Johnstone Young, Chris Manthorp, David Howells, Ellen Tullo |
| Journal title | Ageing and Society, vol 31, part 6, August 2011 |
| Pages | pp 1003-1025 |
| Source | http://www.journals.cambridge.org/aso |
| Keywords | Dementia ; Communication ; Quality of life ; Social policy. |
| Annotation | Dementia and dementia care present huge and growing challenges, both to individuals and to societies worldwide. In the UK recent key policy initiatives have highlighted problems in care provision, noting a lack of appropriate carer guidance, and an overemphasis on strictly biomedical interventions. Communication practices which support agency and empowerment have been identified as areas for particular improvement. A number of communication training and guidance packages are currently available, but these exhibit shortcomings, including a lack of user input and cross-referencing to other communications theory or to relevant empirical evidence; a lack of individualisation; and high context-specificity. In general, their uptake and level of application to care is very low. As a response, the study described here developed a new communications intervention characterised by the direct involvement of a broad spectrum of lay and professional stakeholders. This inter-group dialogue produced an agreed free-to-users, user-informed and user-relevant dementia communications toolkit (DEMTEC), which is empirically supported and adaptable to different socio-cultural and care environments. The authors detail the conceptual background to the toolkit, the inclusive and iterative methodology for its formulation, and how it can be used to help support `personhood' and quality of life and to challenge the socially-constructed `othering' of people with dementia. (JL). |
| Accession Number | CPA-110721014 A |
| Classmark | EA: U: F:59: TM2 |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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