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Centre for Policy on Ageing | |
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Making decisions for people with dementia who lack capacity
— qualitative study of family carers in UK | | Author(s) | Gill Livingston, Gerard Leavey, Monica Manela |
| Journal title | British Medical Journal, vol 341, no 7771, 4 September 2010 |
| Pages | p 494 |
| Source | www.bmj.com BMJ2010;341:c4184 |
| Keywords | Dementia ; Rights [elderly] ; Family care ; Qualitative Studies. |
| Annotation | A large and increasing number of family carers make decisions for relatives with dementia, but find it distressing and lack information and emotional support. Support for carers to make these decisions is important. The authors interviewed 43 family carers of people with dementia in focus groups and 46 carers who had already made such decisions individually. Family carers identified five main problems in relation to decision making: dementia related health and social services; care homes; legal financial matters; non-dementia-related health care; and making plans for the person with dementia if the carer became too ill to provide care. This is a summary of a paper published on bmj.com which notes the difficulties for families in making proxy decisions, especially against active resistance. Families devised strategies to gain agreement to ensure that the person with dementia retained dignity. The strategies from this study will be made available to carers and professionals. (RH). |
| Accession Number | CPA-100908203 A |
| Classmark | EA: IKR: P6:SJ: 3DP * |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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