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Centre for Policy on Ageing | |
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My name is not dementia
— literature review | | Author(s) | Joanne Warner, Alisoun Milne, Julie Peet |
| Corporate Author | Alzheimer's Society; School of Social Policy, Sociology and Social Research, University of Kent |
| Publisher | Alzheimer's Society, London, April 2010 |
| Pages | 54 pp |
| Source | Alzheimer's Society, Devon House, 58 St Katharine's Way, London E1W 1JX. Website: www.alzheimers.org.uk |
| Keywords | Dementia ; Informal care ; Quality of life ; Literature reviews. |
| Annotation | There are some 750,000 people in the UK who have dementia (Alzheimer's Society, 2007), a figure expected to double to 1.4 million in the next 30 years. The 'National dementia strategy for England' (Department of Health, 2009) sets out three key steps in terms of improving quality of life for people with dementia and their carers: public education; proper and timely diagnosis of dementia; and development of appropriate services. This literature review forms the first part of a. a research project on behalf of the Alzheimer's Society with the aim of establishing key quality of life indicators for people with a dementia diagnosis, using evidence that draws directly on their own views and experiences. This review is structured in two parts, the first of which looks at defining and measuring quality in dementia. Here, the literature is either medical or health related (comprising 'objective' measures), or relates to quality of life as a subjective phenomenon (personal perspectives). Part 2 covers outcomes and quality of life indicators for: people with dementia from seldom heard groups (on whom reviews are uncommon); people with dementia and their contact with health and social care services; and quality of life indicators and patient-defined outcomes from other key groups (e.g. those with mental health needs). The review process indicates how little is known about quality of life for people with dementia; and that for too long, the person with dementia has been omitted or ignored compared to other perspectives on quality of life. (RH) |
| Accession Number | CPA-100609002 B |
| Classmark | EA: P6: F:59: 64A |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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