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Centre for Policy on Ageing | |
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My name is not dementia
— people with dementia discuss quality of life indicators | | Author(s) | Toby Williamson |
| Corporate Author | Alzheimer's Society; Mental Health Foundation - MHF |
| Publisher | Alzheimer's Society, London, April 2010 |
| Pages | 52 pp |
| Source | Alzheimer's Society, Devon House, 58 St Katharine's Way, London E1W 1JX. Website: www.alzheimers.org.uk |
| Keywords | Dementia ; Quality of life ; Indicators ; Social surveys. |
| Annotation | In 2009/10, the Mental Health Foundation (MHF) carried out a research project on behalf of the Alzheimer's Society with the aim of better understanding key quality of life indicators for people with a dementia diagnosis, using evidence that drew directly on their own views and experiences. This report introduces some key background issues, and existing quality of life instruments for people with dementia. It describes the approach taken in the project including aims and methodology; the involvement of people with dementia in developing quality of life instruments and measures; and how ethical issues were tackled. There is a particular focus on people with dementia from "seldom heard" groups, including those from black and minority ethnic (BME) groups and those with more severe dementia living in care homes. The key quality of life indicators and findings that emerged from the research are described. In order of importance these were: relationship or someone to talk to; environment; physical health; sense of humour; independence; ability to communicate; sense of personal identity; ability or opportunity to engage in activities; ability to practise faith or religion; and experience of stigma. (RH). |
| Accession Number | CPA-100609001 B |
| Classmark | EA: F:59: 3RI: 3F |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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