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Impact of cognitive impairment on mild dementia patients and mild cognitive impairment patients and their informants
Author(s)Lori Frank, Andrew Lloyd, Jennifer A Flynn
Journal titleInternational Psychogeriatrics, vol 18, no 1, March 2006
Pagespp 151-162
KeywordsCognitive impairment ; Dementia ; Informal care ; Stress ; Evaluation ; United Kingdom ; United States of America.
AnnotationMild cognitive impairment (MCI) and mild Alzheimer's disease (AD) exert substantial burden on patients' lives and the lives of those close to them, and this study aimed to identify key aspects of the impact of cognitive impairment on patients with MCI and probable AD. Focus groups were conducted with 20 MCI patients, 20 AD patients, 16 MCI informants and 11 AD informants recruited from memory clinics in the UK and the US. Sessions were content reviewed to identify key impacts of cognitive impairment, and results compared across diagnostic groups and for patients and informants. Seven key themes emerged: uncertainty of diagnosis; skill loss; change in social and family roles; embarrassment and shame; emotionality; insight; and burden. Patients were able to discuss the impact of cognitive impairment on their lives, and reported frustration with recognised memory problems, diminished self-confidence, fear of embarrassment, concerns about changing family roles due to cognitive impairment, and anxiety. Informants reported more symptoms and more impairment than did patients, and indicated increased dependence on others among patients. (RH).
Accession NumberCPA-090825003 A
ClassmarkE4: EA: P6: QNH: 4C: 8: 7T

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