Centre for Policy on Ageing



Family members providing home-based palliative care to older adults — the enactment of multiple roles
Author(s)	Sarah J Clemmer, Catherine Ward-Griffin, Dorothy Forbes
Journal title	Canadian Journal on Aging, vol 27, no 3, Fall 2008
Pages	pp 267-284
Source	http://www.utpjournals.com
Keywords	Family care ; Terminal care ; Therapeutic services [domiciliary] ; Home nursing ; Social roles ; Qualitative Studies ; Canada.
Annotation	Canadians are experiencing increased life expectancy and chronic illness requiring end-of-life care. Based on a larger ethnographic study of client-family-provider relationships in home-based palliative care, this qualitative secondary analysis explores the enactment of multiple roles for family members providing home-based palliative care to seniors with advanced cancer. Family members had multiple expectations to provide care, but felt that expectations of services were unmet. The process of enacting multiple roles was depicted by three interrelated themes: balancing, re-prioritising, and evolving. Positive and negative health responses resulted from attempts to minimise personal health while simultaneously maintaining health. "True" family-centred care was found to be lacking, but should be a goal of health professionals involved in end-of-life care. (KJ/RH).
Accession Number	CPA-090602201 A
Classmark	P6:SJ: LV: N3: N4: TM5: 3DP: 7S
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...from the Ageinfo database published by Centre for Policy on Ageing.