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Understanding care of people with dementia in Spain
 — cohabitation arrangements, rotation and rejection to long term care institution
Author(s)Jesús Rivera, Felix Bermejo, Manuel Franco
Journal titleInternational Journal of Geriatric Psychiatry, vol 24, no 2, February 2009
Pagespp 142-148
Sourcehttp://www.interscience.wiley.com/journal/gps
KeywordsDementia ; Family care ; Living patterns ; Living with others ; Cross sectional surveys ; Canada.
AnnotationMost people with dementia in Spain live at home with their families. Current changes in the family structure are transforming the care of people with dementia through new cohabitation arrangements and rotation practices. A cross-sectional study, the Neurological Disorders in Central Spain (NEDICES) cohort study, was conducted using both quantitative and qualitative methodologies. 150 caregivers of people with dementia from two communities from Madrid were surveyed using a questionnaire designed to describe cohabitation arrangements and care. Qualitative methods included 13 caregivers participating in focus groups and 3 caregivers in semi-structured interviews aimed to understand rotation practices and rejection in long term care institutions. Characteristics related with rotation were: sex of people with dementia, widowhood, socio-economic status, caregiver relationship and burden of the caregiver. The qualitative study showed that use of the rotation was related to normative behaviours and with obligation feelings, along with a change in the role of women in the current Spanish family. The use of long term care institutions was related to geographical distance of the family. This study's results suggest that rotation has appeared in Spain as a new mechanism of care for people with dementia, and is related to the rejection of long term care institutions. (RH).
Accession NumberCPA-090421507 A
ClassmarkEA: P6:SJ: K7: KA: 3KB: 7S

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