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Frontotemporal dementia (FTD) patients living at home and their spousal caregivers compared with institutionalized FTD patients and their spousal caregivers — which characteristics are associated with in-home care? | Author(s) | Samantha R Riedijk, Hugo J Duivenvoorden, Iris Van Oostrom |
Journal title | Dementia: the international journal of social research and practice, vol 8, no 1, February 2009 |
Pages | pp 61-78 |
Source | http://www.dem.sagepub.com |
Keywords | Dementia ; Spouses as carers ; Living in the community ; Nursing homes ; Comparison ; Netherlands. |
Annotation | Patients with frontotemporal dementia (FTD) need complete care in the final stages of the disease. Some informal caregivers continue in-home care whereas others institutionalise. This Netherlands study identifies differences between in-home FTD patients and their caregivers (FTDH) and institutionalised FTD patients (FTDN) and their caregivers. 12 in-home and 24 institutionalised FTD patients in the final stage of the disease and their spousal caregivers were observed. Neuropsychiatric function disorders, dementia duration and severity, burden, mental and physical health, quality of the current and premorbid relationship and caregiver motivation were analysed. The majority of FTDH patients had dementia of a shorter duration and showed residual independence. In FTDH patients, neuropsychiatric symptoms were more often present whereas apathy and disinhibition were more intense in FTDN patients. FTDH caregivers felt more emotionally burdened but had better mental health. Caregiver motivations were similarly present in FTDH and FTDN caregivers, while the love-motivated caregivers had worse physical and mental health. The authors' data suggest that all FTD caregivers could benefit from psychological support. Motivation for caregiving has intervention potential. (RH). |
Accession Number | CPA-090304204 A |
Classmark | EA: P6:SN: K4: LHB: 48: 76H |
Data © Centre for Policy on Ageing |
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...from the Ageinfo database published by Centre for Policy on Ageing. |
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