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Centre for Policy on Ageing | |
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Information pathways into dementia care services
— family carers have their say | | Author(s) | Andrew Robinson, Jean Elder, Carolyn Emden |
| Journal title | Dementia: the international journal of social research and practice, vol 8, no 1, February 2009 |
| Pages | pp 17-38 |
| Source | http://www.dem.sagepub.com |
| Keywords | Dementia ; Family care ; Information needs ; Services ; Needs [elderly] ; Qualitative Studies ; Australia. |
| Annotation | Family carers' experiences in accessing dementia information and services in Southern Tasmania are described. The researchers conducted focus groups on three topics: information available to family carers prior to a formal diagnosis of dementia; sources of information following diagnosis; and means of transfer of information. Data analysis identified themes reflecting participants' progressive care experiences from hurtful and dismissive attitudes towards initial requests for information and early diagnosis, to futile searching for information within a seemingly disorganised healthcare system, to eventual resolution of a kind whereby dementia services were finally procured for family members to varying degrees - all of which created emotional turmoil and delayed receipt of services. This study strongly emphasises the value of health professionals seriously and empathetically hearing and acting upon family carers' requests for information and prompt diagnosis of dementia. In addition, there is a significant need to improve access and organisation of information and services for people with dementia and their family carers. (RH). |
| Accession Number | CPA-090304202 A |
| Classmark | EA: P6:SJ: UV:IK: I: IK: 3DP: 7YA |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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