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Centre for Policy on Ageing | |
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Out of the shadows
— end of life care for people with dementia | | Author(s) | Lucy Sutton, Emily Sam, Karen Harrison Dening |
| Corporate Author | National Council for Palliative Care - NCPC; for dementia |
| Publisher | National Council for Palliative Care - NCPC, London, 2009 |
| Pages | 43 pp |
| Source | NCPC, The Fitzpatrick Building, 188-194 York Way, London N7 9AS. http://www.ncpc.org.uk |
| Keywords | Dementia ; Terminal care ; Pain ; Quality of life ; Standards of provision ; Projects. |
| Annotation | The National Council for Palliative Care (NCPC) was given funding by Lloyds TSB Foundation for the 2-year Palliative Care and Dementia project, and this publication is the culmination of that work. It brings together current understanding of the issues and challenges, and is informed by the needs of people with dementia and their carers, not only for advance care planning and the assessment and management of symptoms, but also with regard to distress, hydration, nutrition, spiritual needs, and caring for carers. The key findings are mapped against the nationally recommended pathway from the End of life care strategy in England (EoLCS). The importance of partnership working is highlighted by the inclusion of local practice examples and case studies, with contributions from general practitioners (GPs) and specialist researchers, as well as from the Dementia Working Group (DWG). There remains a lack of understanding of dementia and the end of life, and NCPC recommends that national policies must join up end of life care and dementia to ensure that local service development does not leave people with dementia caught between two strands of care. (The National Dementia Strategy was about to be published). (RH) |
| Accession Number | CPA-090218001 B |
| Classmark | EA: LV: CT7: F:59: 583: 3E |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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