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The quality and adequacy of care received at home in the last 3 months of life by people who died following a stroke
— a retrospective survey of surviving family and friends using the Views of Informal Carers Evaluation of Services questionnaire | | Author(s) | Amanda J Young, Angie Rogers, Julia M Addington-Hall |
| Journal title | Health and Social Care in the Community, vol 16, no 4, July 2008 |
| Pages | pp 419-428 |
| Source | http://www.blackwellpublishing.com/hsc |
| Keywords | Stroke ; Dying ; Terminal care ; Community care ; Quality ; Attitude ; Informal care ; Social surveys. |
| Annotation | Stroke is the third leading cause of death in the UK. Despite this, little is known about the care needs of people who die from or following a stroke. In early 2003, 183 questionnaires were returned from a survey of 493 people who had registered a stroke-related death in four Primary Care Trusts (PCTs), a response rate of 37%. This paper reports on 53 deceased from the survey who had lived at home during their last 3 months and who had been ill for more than 1 month. Data were analysed to explore the role of informal carers and the provision of community-based care in the last 3 months of life. Family and friends helped with 82% of deceased with household tasks, 68% with personal care, 66% with taking medication, and 54% with night-time care. By contrast, health and social services helped 30% with household tasks, 54% with personal care, 20% with taking medication, and 6% with night-time care. Two-fifths (43%) of informants had to give up work or make major life changes to care for the deceased, and 26% of informants found looking after them "rewarding". Half (51%) reported that help and support from health services were excellent or good compared to 38% for social services. Results from the Regional Study of Care for the Dying indicated that people who died from a stroke in 1990 and their carers would have benefited from increased levels of community-based care and enhanced communication with care professionals. The data suggest that informal carers continue to provide the majority of care for those who die from stroke, despite government initiatives to improve care for stroke patients and frail older people. Further research is required to explore best practice and service provision in caring for this group. (RH). |
| Accession Number | CPA-080703210 A |
| Classmark | CQA: CX: LV: PA: 59: DP: P6: 3F |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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