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Engagement in activities
 — experiences of persons with dementia and their caregiving spouses
Author(s)Sofia Vikström, Staffan Josephsson, Anna Stigsdotter-Neely
Journal titleDementia: the international journal of social research and practice, vol 7, no 2, May 2008
Pagespp 251-270
Sourcehttp://www.dem.sagepub.com
KeywordsDementia ; Engagement ; Self care capacity ; Spouses as carers ; Qualitative Studies ; Sweden.
AnnotationThis study identifies how those with dementia and their caregiving spouses individually perceive their own, their spouse's and their mutual engagement in everyday activities. 52 Swedish cohabiting spouses, half of whom were diagnosed with dementia, were interviewed. A qualitative constant comparative analysis was performed, identifying four major themes: perceived changes in activity engagement; consequences of experienced changes; dilemmas experienced by the caregivers; and management approaches to handle a changed everyday life. Each individual described their activities to include loss of social engagement and changes in the relationship. Dilemmas experienced by the caregivers included "interfering with the spouse's engagement or not" and "placing the spouse's or one's own needs first". The caregiver management approaches identified included "taking over" or "encouraging initiative"; "lowering demands on avoiding problematic engagement"; and "managing through collaboration". Findings provide insight into everyday engagement for those with dementia and their caregivers, important to healthcare support providers. (RH).
Accession NumberCPA-080702211 A
ClassmarkEA: DN: CA: P6:SN: 3DP: 76P

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