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Centre for Policy on Ageing | |
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Dying with dementia
— the views of family caregivers about quality of life | | Author(s) | Cherry Russell, Heather Middleton, Chris Shanley |
| Journal title | Australasian Journal on Ageing, vol 27, no 2, June 2008 |
| Publisher | Blackwell Publishing, June 2008 |
| Pages | pp 89-92 |
| Source | http://www.cota.org.au / http://www.blackwellpublishingasia.com |
| Keywords | Dementia ; Dying ; Terminal care ; Quality of life ; Attitude ; Family care ; Social surveys ; Australia. |
| Annotation | The objective of this study was to document the views of family caregivers of persons with dementia about quality of life for their relative during the late and terminal stages of the disease, as part of an exploratory study of best quality care and support. 15 former caregivers (5 wives, 5 husbands, 2 sons, 3 daughters) participated in in-depth semi-structured interviews. Participants identified three main sets of indicators of quality of life: the physical body, the physical and social environment, and treatment with respect and dignity. The constructs 'quality of life' and 'quality of care' tended to be conflated in the experience of caregivers. An important role for caregivers was to interpret and represent the subjective experience of the person with dementia. Quality of life needs to be understood from multiple perspectives. Caregivers' views are a central part of this understanding and should be used to inform future research and service development. (KJ/RH). |
| Accession Number | CPA-080620203 A |
| Classmark | EA: CX: LV: F:59: DP: P6:SJ: 3F: 7YA |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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