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Social representations of barriers to care early in the careers of caregivers of persons with Alzheimer's disease
Author(s)Normand Carpentier, Francine Ducharme, Marie-Jeanne Kergoat
Journal titleResearch on Aging, vol 30, no 3, May 2008
Pagespp 334-357
KeywordsFamily care ; Community care ; Usage [services] ; Advocacy ; Dementia ; Social surveys ; Canada.
AnnotationThe first signs of cognitive impairment in older people generally elicit much concern among family members. Reactions range from denial to the active search for information. Some families manage to set up relatively well-organised networks of informal support to help both caregivers and older relatives. However, little is known about the processes underlying the different pathways that families follow on the onset of Alzheimer type dementia in older relatives. To gain a better understanding of barriers to care early in the caregiving career from the first signs of illness to diagnosis, the authors conducted interviews with 32 caregivers recruited in two cognition clinics in Montreal, Canada. Barriers to help resources were analysed from the viewpoint of social representations. This approach allowed the consideration of a broad range of individual and group phenomena capable of fashioning caregivers' representations of this period. The results confirmed the importance of the symbolic dimension of experience in steering social practice. (RH).
Accession NumberCPA-080514207 A
ClassmarkP6:SJ: PA: QLD: IQ: EA: 3F: 7S

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