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Centre for Policy on Ageing | |
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Measuring perceived stigma in persons with progressive neurological disease
— Alzheimer's dementia and Parkinson's disease | | Author(s) | Sandy C Burgener, Barbara Berger |
| Journal title | Dementia: the international journal of social research and practice, vol 7, no 1, February 2008 |
| Pages | pp 31-54 |
| Source | http://www.dem.sagepub.com |
| Keywords | Dementia ; Parkinson's disease ; Attitude ; Measurement ; Evaluation ; Pilot. |
| Annotation | The perceived stigma inherent in progressive neurological diseases, such as Alzheimer's dementia (AD) and Parkinson's Disease (PD), has been under-recognized. The purposes of this pilot study were to examine: the psychometric properties of the Stigma Impact (SIS) and Stigma Experience Scales (SES) when used with persons with AD or PD; and differences in perceived stigma by disease diagnosis. The sample included 26 people with AD and 14 people with PD. The four SIS subscales had acceptable reliability when used with people with PD, while two of the four subscales had adequate reliability when used with people with AD. Internal consistency reliability of the SES was acceptable in the PD sample only. Validity of the total SIS scale and the four subscales was supported through significant correlations with mental status (AD sample only), self-esteem, depression, and personal control. People with AD scored higher on the SIS internalised shame subscale and lower on personal control compared to those with PD. Overall, support was found for the SIS as a reliable and valid measure of perceived stigma in people with AD or PD. The magnitude of perceived stigma in people with AD is comparable to or greater than other population groups with chronic illness, including cancer and PD. (KJ/RH). |
| Accession Number | CPA-080303202 A |
| Classmark | EA: CR6: DP: 3R: 4C: 4UC |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |
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