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Genetic research into Alzheimer's disease
 — a European focus group study on ethical issues
Author(s)Anco van der Vorm, Marcel Olde Rikkert, Myrra Vernooij-Dassen
Corporate AuthorEDCON panel (European Dementia Consensus Network)
Journal titleInternational Journal of Geriatric Psychiatry, vol 23, no 1, January 2008
Pagespp 11-15
Sourcehttp://www.interscience.wiley.com
KeywordsDementia ; Social ethics ; Biological ageing ; Research ; Social surveys ; Europe.
AnnotationNowadays there is an increasing interest in the heritable aspects of Alzheimer's disease (AD). The ethical implications of this kind of research are also attracting attention. Participants of a modified focus group technique stressed the importance of relatives in genetic research, and suggested that a family consent procedure may solve some informal consent problems. The consent procedure ought to be more uniform within Europe and should allow for variation in the types of research being done. Negative social consequences of genetic Alzheimer's disease (AD) research are expected in the short term, but there are hopes of positive consequences in the long term. (RH).
Accession NumberCPA-080212207 A
ClassmarkEA: TQ: BH: 3A: 3F: 74

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