Centre for Policy on Ageing
 

 

It's a family affair
 — consumer advocacy for nursing-home residents in the United States
Author(s)Charles D Phillips, Anne-Marie Kimbell, Catherine Hawes
Journal titleAgeing and Society, vol 28, part 1, January 2008
Pagespp 67-84
Sourcehttp://www.journals.cambridge.org/ASO
KeywordsResidents [care homes] ; Nursing homes ; Management [care] ; Quality ; Advocacy ; Consumer protection ; United States of America.
AnnotationFor more than 40 years, nursing homes in the US have been riddled with evidence of poor performance. To combat problems in this industry, state and federal governments have developed an elaborate monitoring and regulatory structure. At the same time, an important citizens' movement involving nursing home consumer advocacy groups (CAGs) came to life. This paper presents results of a postal survey of 47 active nursing home consumer advocacy groups. They indicate that the majority of these organisations were started by an individual dissatisfied with the care provided to a family member. The political arena in which these organisations were most active was State legislatures. Though they varied considerably, the average CAG operated on a thin financial margin, largely supported by member contributions and donations. These organisations defined their success in terms of their ability to generate policy changes at the State level. Unfortunately, as they pursued these changes, they often failed to develop the organisational infrastructure necessary to assure the CAGs' continued operation. When CAGs ceased operations, it was in most cases the loss of the organisation's original leader or the cumulative effects of the constant struggle to maintain adequate financial resources. (RH).
Accession NumberCPA-071221004 A
ClassmarkKX: LHB: QA: 59: IQ: WYP: 7T

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