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| Exploring the palliative and end-of-life care needs of those affected by progressive long-term neurological conditions |
| Author(s) | Eleanor Wilson, Jane Seymour |
| Journal title | Journal of Care Services Management, vol 2, no 1, October-December 2007 |
| Publisher | London, October-December 2007 |
| Pages | pp 92-102 |
| Source | http://www.henrystewart.com |
| Keywords | Nervous system diseases ; Long term ; Terminal care ; Pain ; Dying ; Needs [elderly] ; Projects. |
| Annotation | Currently, there is a new policy focus on the palliative and end-of-life care needs of people with progressive long-term neurological conditions (PLINC). Perhaps because of the comparative rarity of these diseases - which often have long and unpredictable trajectories - little dialogue has taken place to date about the associated care needs. This paper reviews some of the key challenges raised in providing care for people with PLINC, highlighting the complex problems faced by people affected by these conditions and the challenges these pose for care delivery in the community. In reviewing the literature and policy documents, it is clear that there is wide scope for further research. The authors conclude with an overview of a study currently being undertaken at the University of Nottingham to explore these issues further. The aim of the study is to work collaboratively with health and social care professionals working with service users with advanced neurological conditions (especially Huntington's disease) and their carers to develop recommendations for best practice and insights into the applicability of interventions to enhance palliative and end-of-life care within this client group. (RH). |
| Accession Number | CPA-071206215 A |
| Classmark | CR: 4Q: LV: CT7: CX: IK: 3E |
Data © Centre for Policy on Ageing |
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| ...from the Ageinfo database published by Centre for Policy on Ageing. |