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Living with dementia
 — curating self-identity
Author(s)Jonathan Crichton, Tina Koch
Journal titleDementia: the international journal of social research and practice, vol 6, no 3, August 2007
Pagespp 365-382
Sourcehttp://www.dem.sagepub.com
KeywordsDementia ; Personality ; Memory and Reminiscence ; Family relationships ; Personal relationships ; Social contacts ; Social interaction ; Participation ; Research ; Australia.
AnnotationThis article describes an ongoing interdisciplinary research study in South Australia with community-dwelling people living with dementia. The article focuses on one person living with dementia, her family and support group. Seven people were interviewed and their stories woven into one narrative. The authors' interest is in her self-identity, which is explored through a participatory story-telling approach. In gathering stories with all people who are significant in her life, it was observed that what is driving the stories is an ethical imperative that is shared across her social network. The authors describe this as an imperative to 'curate' her self-identity. 'Curation' combines telling 'about', 'for' and potentially 'with' the person living with dementia in interactions which reproduce and reconfirm her self-identity. It is proposed that curation offers a way in which people, research participants, significant others and health care professionals, can think differently about living with dementia. In particular, it is argued that curation enables the person to be acknowledged in interaction as an individual with a coherent, evolving identity which spans past, present and future. (KJ/RH).
Accession NumberCPA-071206204 A
ClassmarkEA: DK: DB: DS:SJ: DS: TOA: TMA: TMB: 3A: 7YA

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