Centre for Policy on Ageing
 

 

Emotional impact of dementia diagnosis
 — exploring persons with dementia and caregivers' perspectives
Author(s)Faranak Aminzadeh, Anna Byszewski, Frank J Molnar
Journal titleAging & Mental Health, vol 11, no 3, May 2007
Pagespp 281-290
Sourcehttp://www.tandfonline.com
KeywordsDementia ; Diagnosis ; Stress ; Attitude ; Informal care ; Qualitative Studies ; Canada.
Annotation30 patient/caregiver dyads attending a Geriatric Day Hospital Program in Ottawa, Canada participated in this qualitative exploratory study on the impact of dementia disclosure. Data sources included: audio tapes of diagnosis disclosure meetings; in-depth interviews with patients and caregivers within one week of disclosure; and focus group interviews with caregivers within one month. Patients exhibited a range of emotional responses which can be divided into three broad categories: responses suggesting a lack of insight and/or active denial of the diagnosis; grief reaction or emotional crisis related to the experience of actual or anticipated losses associated with dementia; and positive coping responses to maximise the disease outcome. Participants went through stages of emotional response to their diagnosis: not noticing symptoms, noticing and covering up, or noticing and revealing; diagnostic process and disclosure; confirming or shock; denial, crisis or maximising; disorganisation or adaptation. There is a need to develop a better understanding of the experience of people with dementia at the critical point of diagnosis disclosure, in order to design supportive interventions to maximise adaptive coping responses. (RH).
Accession NumberCPA-070614214 A
ClassmarkEA: LK7: QNH: DP: P6: 3DP: 7S

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